Accessibility/Mobile Features
Skip Navigation
Skip to Content
Editorial News
Lifestyles
Classified Sites

The Canadian Press - ONLINE EDITION

Alberta health minister asks U.S. company why it charges Canadians more for drug

TORONTO - Alberta's health minister says he had some hard questions for a U.S. company about why Canadians have to pay more for a lifesaving drug that treats a rare form of cystic fibrosis.

But the company that makes the drug says it has offered a price that is as good as or better than what the 15 countries where the drug is now reimbursed are paying.

Fred Horne, representing provincial and territorial health ministers along with a representative from the Yukon, met in Toronto on Tuesday with Stuart Arbuckle, chief commercial officer of Vertex Pharmaceuticals.

Horne said there was no breakthrough, but negotiations with the company will continue this week.

“We are extremely disappointed that today’s meeting did not result in an agreement to allow the eligible children and adults with CF in Canada to receive this medicine through public reimbursement," Arbuckle said in a statement.

"People with CF are still waiting for access to Kalydeco, and this process is taking much longer than they expect and deserve.”

Kalydeco, which helps people who have the fatal genetic disease, costs about $300,000 a year per patient in Canada.

Alberta has been leading negotiations with Vertex for nearly a year to lower the drug's price so it can be covered by medicare.

"We wanted to know why should Canadian patients be expected to pay a higher price for this drug than U.S. patients," Horne said.

"Why is Vertex funding co-payments for patients that have this drug covered by their private drug plan, but yet they won't extend the same coverage to Canadians who don't have any private health coverage?"

A small group of children have received the drug through clinical trials that Vertex has covered. Spokesman Zachry Barber says the company has offered coverage on compassionate grounds for several months, but wouldn't say how many children.

About 118 Canadians would be eligible for Kalydeco if it were covered by provincial health insurance plans.

One of them, 12-year-old Madi Vanstone of Beeton, Ont., has met with Ontario Premier Kathleen Wynne and scolded her government for the prolonged talks with Vertex. Her mother, Beth Vanstone, has said 11 other countries have managed to strike price deals with the company.

Horne declined to characterize how Vertex responded to his questions. He said company officials were respectful and heard him out.

"I don't want to prejudice the negotiations. This is about patients getting access to the drug," Horne said.

"Bottom line is that we expect Canadians to get a fair deal."

Barber said the company is giving Canada more than a fair deal.

"Our hope is that we will reach an agreement. We believe we''ve offered a price that's as good or better than the 15 countries where the drug is currently being reimbursed," Barber said Tuesday night from Toronto.

In a letter to Horne last month Vertex said it is strongly committed to finding a solution with provincial and territorial governments to ensure public funding of Kalydeco for all eligible cystic fibrosis patients in Canada.

The website of Cystic Fibrosis Canada said the disease mainly affects the digestive system and lungs.

The non-profit group estimates that one in every 3,600 children born in Canada has cystic fibrosis.

Note to readers: This is a corrected story. A previous version identified Jeffrey Leiden as company spokesman

  • Rate this Rate This Star Icon
  • This article has not yet been rated.
  • We want you to tell us what you think of our articles. If the story moves you, compels you to act or tells you something you didn’t know, mark it high. If you thought it was well written, do the same. If it doesn’t meet your standards, mark it accordingly.

    You can also register and/or login to the site and join the conversation by leaving a comment.

    Rate it yourself by rolling over the stars and clicking when you reach your desired rating. We want you to tell us what you think of our articles. If the story moves you, compels you to act or tells you something you didn’t know, mark it high.

Sort by: Newest to Oldest | Oldest to Newest | Most Popular 0 Commentscomment icon

You can comment on most stories on brandonsun.com. You can also agree or disagree with other comments. All you need to do is register and/or login and you can join the conversation and give your feedback.

There are no comments at the moment. Be the first to post a comment below.

Post Your Commentcomment icon

Comment
  • You have characters left

The Brandon Sun does not necessarily endorse any of the views posted. Comments are moderated before publication. By submitting your comment, you agree to our Terms and Conditions. New to commenting? Check out our Frequently Asked Questions.

letters

Make text: Larger | Smaller

Brandon Sun Business Directory
Sudden Surge: Flood of 2014
Opportunity Magazine — The Bakken
Why Not Minot?
Welcome to Winnipeg

Social Media